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Sites for Information on the Human Genome Project and Related Genetics Topics

 

Alliance of Genetic Support Groups

TheGenetic Alliance is an international coalition of families, health professionals and genetic organizations dedicated to enhancing the lives of everyone living with genetic conditions. Representing more than 300 lay advocacy organizations and their millions of members, the Alliance works to improve the health of all by fostering the integration of genetic advances into quality healthcare, public awareness and consumer-informed public policies.

Centers for Disease Control and Prevention - Office of Genetics and Disease Prevention

The mission of the Office of Genetics and Disease Prevention is to integrate advances in human genetics into public health research, policy, and programs.

Division of Extramural Research -- NHGRI

The National Human Genome Research Institute (NHGRI) website provides detailed information on how the Human Genome Project (HGP) was initiated and how it is progressing, who is involved and opportunities for research funding.  This site also contains links to other HGP related publications and information sources.

DNA Learning Center - Cold Spring Harbor Laboratory

The source for timely information about genes in education.

Electronic Scholarly Publishing

The Electronic Scholarly Publishing site is dedicated to the electronic publishing of scientific and other scholarly materials. Of particular interest is the history of science, genetics, computational biology, and genome research.

Gene Clinics

This site is a clinical information resource relating genetic testing to the diagnosis, management and genetic counseling of individuals and families with specific inherited disorders. 

Generational Health

Pfizer Women's Health is dedicated to helping women and healthcare professionals gain a better understanding of health risks and how to manage them.  At this site, you can build your own family health tree.

Gene Tests

This site is a genetic testing resource funded by the National Library of Medicine of the NIH and Maternal & Child Health Bureau of the HRSA.  

Genetics Education Center

This site is dedicated to individuals interested in human genetics and the Human Genome Project.

Genetics Societies

This site contains an online booklet from the Genetics Society of America, including several profiles of geneticists.

Human Genome Project: Exploring our Molecular Selves

The Human Genome Project has released a free, multimedia educational kit for high school students and the interested public. The kit, called The Human Genome Project: Exploring our Molecular Selves, includes:

  • a CD-ROM with seven varied segments
  • an award-winning video documentary, The Secret of Our Lives
  • a commemorative poster
  • an informational brochure, Genetics: The Future of Medicine

Human Genome Project Information

This site covers topics related to the U.S. and worldwide Human Genome Projects.

HumGen

Have you ever wondered if there are policies prohibiting the discriminatory use of genetic information? What has been the response of professional organizations to genetic testing, screening, gene therapy and DNA banking? What regulations exist on gene patenting? These questions can be addressed in some of the reports identified on HumGen. By entering this single door of HumGen you have access to a wide range of information and are connected to credible, relevant policy statements on topics related to human genetics around the world. The purpose of this web site is to connect visitors of this site to credible and readily accessible policy information on human genetics.

NORD (National Organization for Rare Disorders, Inc.)

The National Organization for Rare Disorders (NORD) is a unique federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service

Pharmaceutical Research and Manufacturers of America

This website is sponsored by the Pharmaceutical Research and Manufacturers of America and the American Institute of Biological Sciences. The purpose of this site is to provide a dynamic and accessible information resource on emerging genomics-related issues.

Talk.origins

This site is devoted to the discussion and debate of biological and physical origins. It contains an archive of articles and essays on the subject of creationism.

 

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Some hyperlinks in this area will let you leave the Center for Medical Genetics web site.  These linked sites are not under the control of the Center for Medical Genetics, the Marshfield Clinic Research Foundation or Marshfield Clinic.  The Center for Medical Genetics, the Marshfield Clinic Research Foundation and Marshfield Clinic are not responsible for the contents of any linked site, any link contained in a linked site or any changes/updates to such sites.  We are providing these links to you only as a convenience and the inclusion of any link does not imply endorsement by the Center for Medical Genetics, the Marshfield Clinic Research Foundation or Marshfield Clinic of the linked site.